

Currently we have returned from North arolina. There were weeks of preparation preceding this trip in order to get Will into a clinical trial. All treatment from here on out is experimental since the first round of chemo and radiation was ineffective. Duke had/has a trial using and IV infusion of two chemotherapy agents to attack the tumor. We spent two days at Duke signing consents and Will was taking tests. Doctors and clinicians were confident Will would qualify for the trial and Will was scheduled for his first treatment on Friday morning. Will’s dad Alan had traveled with us and we decided to go to the beach for the rest of the afternoon. It was 80 degrees and sunny so a wonderful day to sit by the waves. Half way through the afternoon we received a call that blood had been noted on the MRI which disqualified Will for the study. The fact that there was an indication of blood on the MRI is not a concern medically, it only meant that the company which is conducting the trial requires everyone in the study to start from the same baseline, meaning no blood. Since we got that news too late to go home Thursday, we spent the night in Durham and flew home Fri. The advantage to being in the Duke study was that all of the chemo drugs would have been free. The same chemo treatment can be done here at St. Luke's in Kansas City but the insurance does not cover the cost of it which we have been told is about $40,000/treatment (Will will require a treatment every two weeks for a year or more if this chemo is effective). We have scheduled a meeting with Dr. Salacz at St. Luke's Cancer institute for Monday/tomarrow at noon to discuss options. We had prayed the whole trip that the Lord would open and close doors as he saw fit. Ruth was a little frustrated and Will peaceful as he remembered outloud that what we pray we must live. Isn't that the truth. We covet prayers and continue to look in joy and with anticipation to what the Lord in going to do.
FInd rest, O my soul, in God alone; my hope comes from Him. He alone is my rock and my salvation; He is my fortress, I will not be shaken." Psalm 62:5-6